To bridge the gap between lack of knowledge and awareness, many non-governments are working to raise awareness, support patients, and push for policy changes to improve the lives of those affected by rare diseases.
Known as Ikris Pharma Network (IPN), the company is said to have been assisting at least 58 Indian patients, who have been suffering from DMD, a genetic disorder characterised by progressive muscle degeneration and weakness due to the alterations of a protein called dystrophin that helps keep muscle cells intact.
